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Web sources

Web sources

WFN-ALS the World Federation of Neurology Research Group on Motor Neuron Diseases and publishers of the ALS Journal

ALSA ALS Association, USA  

Orphanet portal for rare diseases and orphan drugs  


ALS TDI ALS Therapy Development Institute

NEALS The Northeast ALS Consortium

NIH Clinical Trials Summary ongoing clinical trials around the word

MDA Muscular Dystrophy Agency  

MDA-ALS MDA ALS Division  

TREAT-NMD Neuromuscular Network  

CNMR Centro Nazionale Malattie Rare  

NINDS ALS Information Page

ALS Society of Canada

EuroBioBank European Network of DNA , Cell and Tissue Banks for Rare Diseases

Ram-net Registro dei pazienti con malattie neuromuscolari

ALS Research Group 

Neuromuscular Disease Center Washington University

ENMC European Neuromuscular Centre

Robert Packard Center for ALS Research

MNDA Motor Neuron Disease Association UK

NCBI National Center for Biotechnology Information


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